{"id":66,"date":"2015-07-28T17:19:15","date_gmt":"2015-07-28T17:19:15","guid":{"rendered":"http:\/\/nealedenaro.co.uk\/blog\/?p=66"},"modified":"2015-07-29T18:58:42","modified_gmt":"2015-07-29T18:58:42","slug":"living-with-fatigue","status":"publish","type":"post","link":"http:\/\/nealedenaro.co.uk\/blog\/2015\/07\/28\/living-with-fatigue\/","title":{"rendered":"Living With Fatigue"},"content":{"rendered":"

Willpower and adrenaline can be very powerful when combined.<\/p>\n

 <\/p>\n

Together, they are what get me through those days when I’m not at my best, but really need to achieve something – whether that’s visiting family or just dragging myself to work.<\/p>\n

 <\/p>\n

The problem is that both can be very short-lived.<\/p>\n

 <\/p>\n

So on a weekend I tell myself it’s time to rest. And that’s when the fatigue can be at its worst. My spoons have all but disappeared and the only option I have is to just do nothing – not even watch TV or read a book.<\/p>\n

 <\/p>\n

And I feel bad. “Why can’t I do the things I want to?” So next time I have some spoons, I go all out to do the things I’ve missed out on…and set myself back in the process.<\/p>\n

 <\/p>\n

Living with fatigue is a constant balancing act that takes time to process and understand – I can still fall into bad habits even now, 18 years later. That’s why people who don’t have M.E. find it so difficult to comprehend. They don’t get why I seem fine one minute and exhausted the next, or why I can feel so bad after a full day of rest.<\/p>\n

 <\/p>\n

In reply, I like to paraphrase Bruce Banner:<\/p>\n

 <\/p>\n

\"GM_20150728_202441\"<\/a><\/p>\n

\n

Share this:<\/h3>